Ali and I are sitting in a hospital room and Brady is sleeping in a crib next to us. He is connected to a pulse oximeter on his foot (oxygen levels in his blood) and three heart monitor leads on his chest. He also has a constant milk flow (35 ml per hour) from a feeding pump into his J-tube.
The hospital room is very nice. There is a double bed, a reclining chair, TV, bathroom, and a window view. Brady is still under the care of the nursing staff. They stop in every four hours or so to check vitals, add more milk to his feeding machine, give him medicine, etc.
Ali and I are learning how to care for Brady. We took a class at 4:00 that went over the G-J tube and the feeding pump. We learned how to work the devices, how to clean them, and some troubleshooting tips.
At 5:00 we met with a home care nurse. She gave us our feeding pump, tubing, syringes, backpack, and all of the accessories we need to feed Brady at home. We will have 24 hour phone support from their nursing staff if we need it.
Ali and I both fed Brady today. He is taking about 20 ml every feeding. He still is very sleepy, and the nurses continue to give him pain medicine when he looks uncomfortable. Ali also gave him some medicine through the J-tube.
We have more meetings scheduled for tomorrow morning. We're looking forward to talking to the doctors during rounds to get a better idea of what they're thinking about Brady's progress. We still feel like we need more experience using Brady's new equipment.
Ali had another incision check today and everything seems to be healing very well.
It's great to be in the same room with Brady, and it seems like we're getting closer to having our entire family together for the first time.
With love,
Tyler, Ali, Ava, Casey and Brady
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