Brady went to see a pediatrician on Monday because we had some concerns about the area around his feeding tube. The area looked red and swollen and there was some fluid coming out around the tube. The doctor said it wasn't infected but gave us some topical antibiotics to help prevent any future infections.
The school district OT came on Tuesday. She spent an hour and a half with Ali and Brady going over paperwork and discussing his progress. The OT said Brady's muscle tone looked normal for a child his age.
The home care nurse came on Wednesday. She was also concerned about the area around his feeding tube. She was also concerned that Brady hasn't gained as much weight as he should.
We contacted our pediatrician to talk about Brady's weight. The doctor had recommended Brady getting 900 ml each day. We consistently have been feeding him between 800 and 850 ml. Instead of giving him a bolus feed through his tube during the day, the doctor recommended adding a teaspoon of formula to each of Brady's bottles. They believe this will give him enough calories to gain weight. We've done that for the past few days, and Brady drinks the bottles of breast milk with formula very well.
I placed Brady on his tummy twice on Sunday and left the room briefly while chasing the other kids around the house. When I came back into the room, Brady was laying on his back and smiling. Hopefully it's a good sign of things to come for Brady to have that strength and body control at 12 weeks. He continues to smile and coo more and more. Ava and Casey really love interacting with him.
Brady will have his initial appointment with Gillette Children's Hospital (in Burnsville) on Tuesday. We've heard nothing but great things about their program, and we're anxious to hear their thoughts about Brady's progress and future treatment. The school district OT will also visit our house to work with Brady on Tuesday. The home care nurse is coming to our house on Wednesday.
We want to thank you again for all of the words of encouragement and prayers. We're hoping all of you have a blessed week.
With love,
Tyler, Ali, Ava, Casey and Brady
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