Progress

The NICU is teaching us patience. In our first few days there, we were asking for estimates on when Brady would be home. One doctor responded, "Weeks". That really narrowed it down for us. :) Most of the time they told us that they really didn't know. They explained that every child is different and there are so many steps in the process.

Over time we've begun to understand what they were trying to say. Every day is a miracle for Brady. There is no timetable. We know Brady will come home when he's ready, and we're willing to wait as long as necessary. We've come to celebrate the small improvements and brush off the setbacks.

Today was another day to celebrate for Brady.

Brady took 52 ml at 6 p.m. yesterday, 25 ml at 9 p.m., 25 ml at midnight, 60 ml at 6 a.m., and 40 ml at 9 a.m. today.

Ali fed him 15 ml at noon and 53 ml at 3 p.m. That was his best afternoon feeding ever! Ali said it was the most relaxed he's been while he was eating.

He seems to be adjusting well to the thicker milk. They continue to keep his upper body elevated and use the Danny Sling. They also have started giving him a five day trial of Zantac to see if that helps with the reflux.

The last two days I arrived at the hospital around 4 p.m. and stayed for about an hour. Brady was asleep both of those days the entire time. I just placed him face down on my chest and snuggled with him.

Today when I arrived he was wide awake. It's such a blessing to interact with him. He's tracking well and really enjoys it when we talk to him. I still gave him his tummy time on my chest, but he was constantly lifting his head and squirming. He's turning into a strong little boy.

The nurses said he had gained 40 grams from yesterday (1.4 ounces). Once again, this is a good sign that he is getting more healthy and strong.

When the OT worked with him today, she placed him face down on his forearms and shins. Brady was holding his head up for an extended period of time. She commented that this was normal behavior for a three month old. The OT also mentioned that he was less stiff today and his joints had loosened up nicely. The ankle clonus also didn't show up at all today.

The nurses feel like he's making great strides. We can't wait to see him again tomorrow.

We know that Brady continues to be lifted up by your prayers. Please keep them coming. :)

With love,

Tyler, Ali, Ava, Casey and Brady